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Therapy Dictionary Tristen *Sensory Integration: The sensory system is responsible for taking in and processing all of the information coming to us from our environment. Please read Kari's (mom to Abby) article for a wonderful introduction to what is involved in the sensory system and 'sensory integration dysfunction' (SID). Check out www.SIfocus.com for a new magazine filled with issues and ideas surrounding SID. * *Habermann Feeder: This unique bottle may aid in early feeding difficulties by allowing the parent to squeeze the special nipple to express breast milk or formula to a baby whose suck is weak. It can be viewed at www.medela.com under ‘specialty feeding products’. Speech Therapy: A Speech Language Pathologist (SLP) works on both receptive (understanding of what is being said) and expressive (spoken) speech skills. In the early years there may be some overlap between a SLP and an OT when it comes to oral motor exercises, however, there are also *pre-speech skills* that a SLP can focus on before a child is ready to produce actual words. If problems with apraxia or articulation exist, they can be noted and worked with early when a SLP is involved. If baby sign or a picture communication system (PECS) are recommended, a SLP can help implement these programs. *Apraxia (verbal dyspraxia) www.apraxia-kids.org *Baby Sign: A modified sign language program with child friendly signs aimed at providing a method of communication before and during expressive language emergence. *PECS: 'Picture Exchange Communication System' www.pecs.com Children use a series of picture cards to communicate their wants and needs. Physical Therapy: The gross motor development of a child is overseen by a Pediatric PT. Proper positioning, rolling, crawling and walking can all be aided by PT exercises and games. Swings, ball pits and gymnastic equipment are often available in a PT clinic. In your home, a PT may use cushions for obstacle courses, blankets for swings and many of the toys you already have for reaching, squatting and jumping games. *Ball Therapy: A physical therapist may use various exercises on an inflated exercise ball to aid neck strengthening, balance reactions, stomach muscles, etc. *Warm Water Therapy: A physical therapist may use a warm water pool as a treatment area. The water provides great stimulation, resistance and fun.
Additional Therapies Brain Gym: Based
on research by Paul Dennison, Ph.D that cross lateral movements can
encourage whole brain learning, this program (offered through books or Brain Gym
certified instructors) outlines a series of exercises aimed at using physical
movements to enhance learning. More information, books and location of
instructors available at www.braingym.org
Carla Hannaford's book (see 'Book Nook') compliments the
Brain Gym series of movements by offering a neurobiologists view of how movement
affects the brain. Essential Fatty Acids: Often referred to as 'EFA's', these fats are essential for brain development. From birth, breast milk and DHA fortified formulas provide these to our babies' developing brain and body. Later, EFA's can be obtained through food sources such as fish, avocadoes and nut butters. EFA supplementation oils and capsules are also available. For an in depth look at EFA's, please read Yael's (mom to Naomi Sarah) article. Ghrelin: An exciting recent discovery, ghrelin is a hormone produced in the stomach that helps regulate feelings of hunger and fullness (satiety). An initial study showed ghrelin to be significantly higher in individuals with PWS vs. the general population. Interestingly, whether a person with PWS was obese or thin, their ghrelin levels were significantly elevated. More ghrelin means increased hunger so the possibility of a ghrelin blocker is very exciting for our children. Current research is underway to develop a ghrelin blocker called Octreotide. Please read Lisa's (mom to Cameron) article for more information Growth Hormone: Now
FDA approved in America for use in children with PWS, Growth Hormone is changing
the course of this syndrome. Abnormal functioning of the hypothalamus can
lead to insufficient release of GH in our children. By supplementing GH with
daily subcutaneous injections, positive results have been seen in linear growth,
decreased amount of body fat and increased amounts of lean body tissue. An
endocrinologist typically prescribes and follows a child on GH injections.
Appointments with the 'endo' every 3 months will help to stay current on dose
amounts, scoliosis monitoring and thyroid function levels. PWS
is a qualifying diagnosis for GH treatment, meaning that no stim test is
required prior to obtaining GH. Contact Pfizer
Bridge Program at 1 800 645 1280 for more information regarding "Genotropin"
growth hormone. They can be a wonderful advocate for insurance approval and have
financial help programs available. Yoga: We used Yoga for the special child by Sonia Sumar. For the youngest baby, this program begins as a series of stretches that grow in number as the baby grows. With developmental progression comes more recognizable yoga poses. We had fun using this program for increased circulation, exercise and playtime. Once Nick was a toddler and enjoyed the animal positions in yoga, the book A Yoga Parade of Animals by Pauline Mainland became a favorite due to it's bright illustrations, simple instructions and photos of children demonstrating each pose. |